As many of you know Kaden is back in the hospital. He has Pulmonary Hypertension. In english...he has high blood pressure...not the kind you can measure from a cuff but the kind that is only seen in an echocardiogram. We had been worried about him requiring more oxygen so we went to the cardiologist. They discovered he had severe PPHN (same as above). We then went straight to his pulmonologist appt. and discovered he was not keeping his oxygen saturations where they need to be.
NUMBER ONE: This didn't happen at home and we didn't have to call the peramedics.
They were not feeding our little guy any food...just iv fluids to keep hydrated. Of course, everyone asks why not? but you see your blood from your heart has to be sent to your stomach to help digest your food. They wanted his heart to focus on pumping to his lungs. So, finally after being such a sweet and content baby (not even being feed) for thursday, friday and Saturday....Kaden hit his breaking point of starving!! I asked if your not going to feed him can he at least have something to ease his hunger pains. So they did. His night went ok but he keep dropping his saturations so they decided to intubate him....scary...back to square one.
The night nurse had come from another hospital that mostly dealt with the heart.
The night nurse had come from another hospital that mostly dealt with the heart.
NUMBER TWO:She suggested a medication for him to help his heart pump easier
So they decided on Sunday right after we had arrived to intubate him...he was franticly upset and gave me a look like Mom Please take this away! It litteraly broke my heart. They decided to do an eccho and....
NUMBER THREE: His Pressures had decreased!! YAY!!
Yesterday was a special day...after him being soo out of it on Sunday with the muscle relaxer he was finally off of that. So he was able to...
NUMBER FOUR: Open his EYES!!!
Rusty came after work and he whispered in Kaden's ear. "I LOVE you Kaden!" and
NUMBER FIVE: He SMILED!!!!!!!!!!
There is sooo much more to explain and that goes on minute by minute but that is my update. "Come what may, and Love it..."