Kaden YesterdayAs many of you know Kaden is back in the hospital. He has Pulmonary Hypertension. In english...he has high blood pressure...not the kind you can measure from a cuff but the kind that is only seen in an echocardiogram. We had been worried about him requiring more oxygen so we went to the cardiologist. They discovered he had severe PPHN (same as above). We then went straight to his pulmonologist appt. and discovered he was not keeping his oxygen saturations where they need to be.
NUMBER ONE: This didn't happen at home and we didn't have to call the peramedics.
They were not feeding our little guy any food...just iv fluids to keep hydrated. Of course, everyone asks why not? but you see your blood from your heart has to be sent to your stomach to help digest your food. They wanted his heart to focus on pumping to his lungs. So, finally after being such a sweet and content baby (not even being feed) for thursday, friday and Saturday....Kaden hit his breaking point of starving!! I asked if your not going to feed him can he at least have something to ease his hunger pains. So they did. His night went ok but he keep dropping his saturations so they decided to intubate him....scary...back to square one.
The night nurse had come from another hospital that mostly dealt with the heart.
The night nurse had come from another hospital that mostly dealt with the heart.
NUMBER TWO:She suggested a medication for him to help his heart pump easier
So they decided on Sunday right after we had arrived to intubate him...he was franticly upset and gave me a look like Mom Please take this away! It litteraly broke my heart. They decided to do an eccho and....
NUMBER THREE: His Pressures had decreased!! YAY!!
Yesterday was a special day...after him being soo out of it on Sunday with the muscle relaxer he was finally off of that. So he was able to...
NUMBER FOUR: Open his EYES!!!
Rusty came after work and he whispered in Kaden's ear. "I LOVE you Kaden!" and
NUMBER FIVE: He SMILED!!!!!!!!!!
There is sooo much more to explain and that goes on minute by minute but that is my update. "Come what may, and Love it..."
I'm so sorry to see that Kaden is sick, my little girl also has PPHN and spent time after the NICU in the ICU. I would love to talk to you and offer any help or advice. I know how hard these times are for you and your family.
ReplyDeleteHe will be in our prayers.
oh this little guy is such a fighter! I get teary thinking about all the things he has already faced. What a little miracle. You have such a great attitude and you will be blessed! you guys are in my thoughts and prayers!
ReplyDeleteOur prayers are with you. I'm impressed that you're seeing the tender mercies as it happens. I hope you can keep that perspective.
ReplyDeleteI haven't checked in on you guys lately. I am so sorry to hear that the little guy is back in the hospital again. You and your family have seen many tender little mercies with your little guy. Please know that you will continue to be in our thoughts and prayers.
ReplyDeleteLove,
JoLynn
hey jacquie i just heard about kaden going back to the hospital so i hurried and went straight on your blog! sorry i havent blogged in along time! i would have known sooner if i had. well jacquie i want you to know that im thinking of you! im glad he is doing better! Aunt Liz sends her love and hopes the best! YOu are in my prayers! love you!
ReplyDeleteFight, little guy---fight! We are all thinking about him and praying up here---we love you
ReplyDeleteI talked to Cindy at Church today. Know our prayers are with you as this journey gets longer and more difficult. Love you guys.
ReplyDeleteOh sweet Jacquie. When I was in Young Women with you I always felt that you had a mature soul and were meant to do great things. But I never imagined you would have something like this come your way. I know the Lord loves you and will care for you in this difficult time. My heart is breaking for you. We will be praying for you. Please let us know if there is anything at all we can do for you.
ReplyDeleteJacquie, I am so very sorry for you and your husband. I cannot imagine what your going through. Your in my prayers.
ReplyDelete